Some background info on this post: This post was actually a Thank you e-mail sent to all the great moms in the blogosphere that helped me out tremendously sharing their experiences about their kiddos. I'm publishing this message now, just to get everybody on the same page, and as I said before to make things less random. This is how it all goes:
Fast forward to January 11, 2012 the birth. After a really
stressful pregnancy we decided to induce labor, I got my hospital bag ready,
did my last updates on facebook, picked up my father from the airport and since
we didn’t get a miraculous ultrasound where everything looked suddenly and
inexplicably “normal”, we prayed REALLY hard for an orthopedic problem. Some
prayers can sound really crazy as you all know. After an induction turned
emergency c-section, Zach was born… and then there was silence, complete
absolute silence. Holy crap! It’s the worst case scenario! That was the first
thought that crossed my mind as I officially entered the Special Needs
motherhood club that I had read so much about. Now not even my glass half full
husband could deny it, we were Dutch citizens, I could see the sheer fear in
his face, something that I had never seen in him before because you do not
know, but just like all of your husbands, he also has superpowers.
Zach was immediately put
on a ventilator and rushed to the NICU, where he stayed for 50 days. 50 Days
that were filled with more tears and tests, including the so called and
glorified Microarray that came back, along with many other tests “normal”. He
had a surgery that included among many other procedures a g-tube placement and
a muscle biopsy, and in the meantime we fell in love with our boy that despite
all his challenges managed to be awfully cute and adorable and wrapped all the
NICU staff around his crooked little finger.
Zach in NICU fighting the good fight |
My blog quest continued as
Zach was still undiagnosed, then the MRI
results came back… NORMAL. But I knew my child, I found that very hard to
believe; and I guess that the doctors agreed on that too, and they reviewed the
MRI with a microscope. Both hemispheres of our Zach’s brain were slightly and
symmetrically smaller than normal, so slightly that in any other baby that wouldn’t
be a concern; but we were talking about Zach here and well... he didn’t cry or
blink or swallowed or had any facial expression; he had contractures in several
joints, hypotonia and there were doubts about his sight and hearing; meaning
that there was a concern about his brain, a big concern, “fear for his life”
concern. Suddenly we slipped from worst case scenario to really REALLY worst
this only happens to other people scenario.
Continue to Part III
Continue to Part III
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